Wednesday, November 18, 2009

Support Group

I have to be honest with you, I was not thrilled when Romi told me about a Brain Tumor Support Group and asked me if I wanted to join her and Beau. Don't get me wrong, I wanted to support my brother but I knew it was going to be extremely difficult. Sometimes it is easier (but not better...I know) to just pretend that none of this is happening. I knew if I went to a support group I would have to really admit that my brother has a brain tumor and that is so hard to do. I think about it every day but it is different to sit and chat about it with others who have a brain tumor or those who have a loved one with a brain tumor. It's a scary realization and one I would rather pretend wasn't happening.There was a lady named Molly who really touched my heart. She was so honest and real. I know this was a support group for people with brain tumors but I felt like it would pertain to anyone. It made me think about my life and what I am doing with it.

Molly is currently going through chemo and she has had most of her frontal lobe removed due to a tumor. Instead of feeling sorry for herself, though at times I'm sure she does, she said she was looking over her past years of her life and (other than changing her new hardwood floors that she hates) she wouldn't change a thing. I thought about that and came up with many things I would change...none of them even coming close to having half my brain removed and going through chemo while having the toilet be my best friend as I puke my guts out. She also said that it was hard for her to look at her friends and see what they were doing with their lives and knowing that she could have been where they are but because of her tumor she isn't. She had a good job and a lot of money. Now she is struggling financially because she can't work and her life didn't turn out quite the way she planned...still she wouldn't change anything.

What am I complaining about?

I think this is a great group for Beau. The people are all so nice and Beau is able to talk about his experiences with people who know what he is going through. They give advice and encouragement. I did sit and cry for parts of it, which I knew I would do, but overall it was a wonderful experience and I can't wait to go back.

Beau and Melissa after the support group...
It was awesome to share this experience with Beau, Melissa, and Romi. They are three of the most amazing people I know...and I'm not just saying that. Beau is a hilarious and strong warrior, Melissa is an angel who is literally saving my brothers life and Romi is the one who keeps us all together. Without her I wouldn't know what to do. I look to her for all the answers, and believe it or not, she always has them...we'd all be lost without her. I am so lucky to have these three in my life.

3 comments:

Auntie Romi said...

Like I didn't cry enough today Jai! That was a beautiful post and you are a beautiful person inside and out. Thank you for your nice comments but you are the constant in our family providing compassion, strength, kindness and love. You are ALWAYS there I love you more than you can know. I am so lucky that I didn't have to search for you or wait to befriend you at school. When I was five years old, mom put you in my arms and at that moment I knew that my best friend had arrived. I am so glad that God loves me enough to have put such an angel in my life.

Jaime said...

That was the nicest thing anyone has EVER said to me...EVER!! However, what you don't realize is that when mom put me in your arms at 5, you've never put me down. I feel like your arms are always wrapped tightly around me and because of you I am who I am. Thank you.
I love you!

Auntie Romi said...

My arms will ALWAYS be around you, sorry it is sometimes more like a vice grip. Love you too little sis!